Clothing company gives backing to month long campaign

Isabella and Dylan with baby Gabriel who are part of the Rusks & Rebels campaign for Williams Syndrome. Picture by RJM Photography.
Isabella and Dylan with baby Gabriel who are part of the Rusks & Rebels campaign for Williams Syndrome. Picture by RJM Photography.

A baby and children’s wear company is raising awareness of a rare chromosome disorder.

Rusks & Rebels, on Benton Business Park, is using models who have Williams Syndrome in its recent photo-shoot, including the 14-year-old son of owner Gayle Westgarth.

Williams Syndrome is a condition for which early diagnosis is key to a child’s development, health and ensuring parents get the right support, with May being Williams Syndrome awareness month.

Gayle, who founded Rusk & Rebels in 2011, said: “I have always wanted children with Williams Syndrome to model for us, but with it being so rare, it is only recently I have met another two local families affected by the condition and I am delighted their children took part in the photoshoot.

“The pictures are fabulous and we are very proud. I was fortunate Dylan was diagnosed at 14 months but this is not always the case and early diagnosis is key for families to access the right support.

“Families shouldn’t be put in a position of questioning health professionals when they suspect their child has the condition.”

Features of the condition are characteristic facial appearance including small upturned nose, long upper lip, wide mouth, full lips, small chin and puffiness around the eyes; heart and blood vessel problems; hypercalcemia; low birth weight/slow weight gain; feeding difficulty; irritability during infancy; dental abnormalities; kidney abnormalities; sensitive hearing; musculoskeletal problems; and learning difficulties.

Rusk & Rebels are supporting the month by donating all their profits from any online sales during May plus any commission through Gayle’s at home parties booked in May and June.

People can view the collection online or visit the Rusk & Rebels pop up shop in Fenwicks on May 18, from 9am until 10pm where a one hour personalised service will be offered on selected items.

For more information visit www.ruskandrebels.co.uk or contact Gayle on 07500 956838.