Luke’s name will live on as family launches charity

Luke Collins with his mum Fiona. GM032817
Luke Collins with his mum Fiona. GM032817

Just 12 months after a brave toddler lost his battle against an aggressive brain tumour, a charity has been set up to ensure his name lives on.

Luke Collins, from Holystone, was diagnosed with an inoperable brain tumour known as optic nerve glioma, at seven-months-old.

The charity is so important to me as I desperately want Luke’s name to be remembered

Fiona Collins

In February 2014, his family made a ‘last gasp bid’ to save his life and set up Luke’s Life Long Labour with the aim of raising £250,000 to enable Luke to undergo a surgical procedure in Liverpool to remove part of the tumour, with follow up specialist radiotherapy in the United States.

Unfortunately, after years of gruelling treatment and chemotherapy, the brave four-year-old lost his battle with the tumour before he could get the treatment.

Now, to coincide with the anniversary of his death, his family have set up Luke’s Life Legacy to help other families in the same position, gaining registered charity status.

Mum Fiona said: “I miss Luke every minute of every day.

“The charity is so important to me as I desperately want Luke’s name to be remembered.

“I am desperate to help other families in our situation, because life was unbearable at times, watching Luke suffer.

“Luke was an inspiration during his short life and his story has touched so many people. We are so proud to have had a son like Luke.

“I know it comes too late for Luke, but I want us to be part of ultimately finding a cure for gliomas.”

The charity is aiming to raise enough money to provide families of children with brain tumours accommodation when travelling to hospital; provide or assist with the provision of respite holidays or short breaks for families; and provide funding for the development of research into practical applications for the prevention, treatment and cure of children’s brain cancer, particularly low-grade gliomas.

A welly wander will take place at the charity’s official launch on Saturday, June 13, starting at 10am at Holystone Primary School car park around the Rising Sun Centre, followed by a balloon release.

Cakes, refreshments and merchandise will be available from 11am to noon after the wander.

A charity ball will take place on Friday, October 23, at The Village Hotel.

For more details about upcoming events and how to get involved, visit